Evidence map›Paper›PMID 41858240›Full record

ReviewDiabetic medicine : a journal of the British Diabetic Association2026

Meaningful engagement of lived experience in diabetes research and health service improvement: A rapid review of barriers to and enablers for community involvement among adults with type 2 diabetes.

J E Jordan, E Litterbach, R Geerling, E P Lam, T Fitzgerald, R Kelly, J Manski-Nankervis, M Read, E I Ekinci, T C Skinner and 2 more

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Diabetic medicine : a journal of the British Diabetic Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

J E JordanSchool of Psychology, Deakin University, Geelong, Victoria, Australia.ORCID https://orcid.org/0000-0002-2625-7985
E LitterbachSchool of Psychology, Deakin University, Geelong, Victoria, Australia.
R GeerlingSchool of Psychology, Deakin University, Geelong, Victoria, Australia.ORCID https://orcid.org/0000-0002-2185-5695
E P LamACBRD Lived Experience Project Advisory Group: Type 2 Diabetes Community Involvement, Melbourne, Victoria, Australia.
T FitzgeraldACBRD Lived Experience Project Advisory Group: Type 2 Diabetes Community Involvement, Melbourne, Victoria, Australia.
R KellyACBRD Lived Experience Project Advisory Group: Type 2 Diabetes Community Involvement, Melbourne, Victoria, Australia.
J Manski-NankervisAustralian Centre for Accelerating Diabetes Innovations (ACADI), Melbourne Medical School, The University of Melbourne, Melbourne, Victoria, Australia.
M ReadAustralian Centre for Accelerating Diabetes Innovations (ACADI), Melbourne Medical School, The University of Melbourne, Melbourne, Victoria, Australia.
E I EkinciAustralian Centre for Accelerating Diabetes Innovations (ACADI), Melbourne Medical School, The University of Melbourne, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0003-2372-395X
T C SkinnerSchool of Psychology, Deakin University, Geelong, Victoria, Australia.
J SpeightSchool of Psychology, Deakin University, Geelong, Victoria, Australia.ORCID https://orcid.org/0000-0002-1204-6896
E Holmes-TruscottSchool of Psychology, Deakin University, Geelong, Victoria, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundConsumer and community involvement (CCI) is increasingly recognised as critical to advancing equity, relevance and impact in diabetes research and health service improvement. However, the meaningful and representative involvement of people with diabetes, particularly those with type 2 diabetes (T2D) and from diverse communities, remains limited. AIM AND

methodThis article provides an overview of the emerging CCI literature in the context of diabetes, including a rapid review identifying barriers to and enablers of CCI in research and health services for people with T2D.

resultsKey barriers included negative past experiences of CCI, lack of tailored CCI approaches and experiences of diabetes stigma. Enablers of involving those with T2D include building professional-community partnerships and facilitating genuine contribution and collaboration through safe and inclusive environments, valuing community expertise and co-sharing of power and ownership of projects. While such strategies were drawn from studies involving culturally, ethnically and linguistically diverse populations, the literature is largely limited to high-income countries. Practical and conceptual directions to advance CCI in diabetes research and health services are considered, including the need for co-design of context- and community-specific approaches of CCI, routine evaluation of (community-relevant) impacts of CCI and resourcing facilitators and systems to engage meaningfully in CCI.

conclusionThese findings suggest key considerations to support more inclusive, representative and impactful involvement of people with diabetes and identify the need for further research to tailor CCI strategies to the diverse communities they aim to serve.

Indexed as

Community ParticipationDiabetes Mellitus, Type 2AdultHumansSocial Stigmapatient experiencepublicqualitative methodstype 2 diabetes

Identifiers

PMID41858240
PMCPMC13613997

What Socratic holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.