A Cross-Sectional Study Utilizing Online Support Communities for Tic Disorders: the Association between Participation Duration and Quality of Life in Children with Tic Disorders and Their Caregivers.

Han Wu, Wenhui Sun, Juan Wang, Weiwei Cui, Leiyu Shi

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Article in European journal of pediatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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5 · Who and what money

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5 authors.

Han Wu *Department of Health Policy Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.

Wenhui Sun *Department of Nutrition and Food Hygiene, School of Public Health, Jilin University, Changchun, China.

Juan WangDepartment of Nutrition and Food Hygiene, School of Public Health, Jilin University, Changchun, China.

Weiwei CuiDepartment of Nutrition and Food Hygiene, School of Public Health, Jilin University, Changchun, China. cuiweiwei@jlu.edu.cn.

Leiyu ShiDepartment of Health Policy Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA. Lshi2@jhu.edu.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This study aims to investigate the utilization of online support communities by caregivers of children with Tic disorders (TD) and explore its relationship with children's quality of life, anxiety levels, and caregivers' quality of life. In this cross-sectional study, 330 TD children and their caregivers from the TD online support communities were included. They filled out general information questionnaires, self-assessment scales for quality of life and anxiety, tic severity scales, and answered several open-ended questions. Open-ended questions were used to explore caregivers' experiences with online support communities through qualitative analysis. Statistical analyses included univariate analysis, multifactorial regression, and Spearman correlation to examine the relationship between participation time and quality of life, anxiety. In qualitative analysis, three themes document the experience of using TD online support community. In the correlation analysis, there is a significant positive correlation between participation time and caregiver quality of life. Similarly, the longer the participation time, the higher the quality of life and lower the anxiety level of TD children. We also found that frequent access to online support communities can reduce anxiety and depression among caregivers. Higher per capita monthly household income and the education level of caregivers can improve the quality of life of TD children and caregivers, reducing anxiety and depression.

conclusionOnline support communities play a significant role in improving the quality of life of TD children and their caregivers, reducing anxiety, and providing valuable emotional and informational support. WHAT IS KNOWN: • Online support communities often provide members with information support, emotional support, online support, and respect support. • TD online support community is an online community dedicated to providing information exchange and resource sharing for TD patients and their caregivers, playing a crucial role in improving patients' lives. WHAT IS NEW: • Quantitatively demonstrate that long-term participation in TD online support communities is associated with improved quality of life for children with TD and their caregivers, as well as reduced anxiety levels in children with tic disorders.

Indexed as

CaregiversInternetQuality of LifeSelf-Help GroupsSocial SupportTic DisordersAdolescentAnxietyChildCross-Sectional StudiesFemaleHumansMaleSurveys and QuestionnairesAnxiety levelOnline support communitiesQuality of lifeTic disorders

Identifiers

PMID41888346

DOI10.1016/j.ijnurstu.2013.11.006

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.