ReviewNursing open2026
Exploring the Intersection of Rare Diseases and Mental Health Within the Diagnostic Odyssey: A Narrative Review and Thematic Synthesis.
Review in Nursing open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo explore what is known about the intersection of mental health and rare diseases.
designNarrative review with peer-reviewed literature from 2009 onwards.
methodsThe study searched for literature on these databases in September 2024: CINAHL, Scopus, Pubmed, Medline, Embase, and PsycInfo, as well as citation chaining and supplementary searches on Google Scholar. A combination of MeSH headings, keywords, truncations, and proximity searches with Boolean operators was used.
resultsRelevant literature highlighted four themes that underpinned the intersection of mental health and rare diseases: (1) hope and hopelessness, (2) identity formation and conflicts, (3) connection and disconnection, and (4) access, advocacy, and a lack of service integration.
conclusionThe narrative review highlighted the complex intersection and poor integration of mental health and rare diseases, where distress and uncertainty are core aspects of the living experience. Despite challenges, hope and resilience persevere. IMPLICATIONS: Better understanding of the connection between mental health and rare diseases allows for holistic patient care. It raises awareness for the need for increased proactive mental health services and highlights shared experiences of a broad community. This allows systemic changes to be more feasible and help improve patient outcomes. IMPACT: This narrative review deepens knowledge of the complex connections between mental health and rare diseases through a lived experience lens, opening pathways for further research into the unique but shared struggles of the community. Emphasising the need for holistic disease management of physical and psychosocial impacts, nurses and healthcare workers alike are then better equipped to provide tailored care. PATIENT OR PUBLIC CONTRIBUTION: There was no patient or public contribution to this paper as the review utilised existing studies and research in the academic field.
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Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.