Evidence map›Paper›PMID 41964761›Full record

ArticleWorld journal of urology2026

Bladder exstrophy on YouTube: an evaluation of quality, actionability, and user engagement.

Aidan S Weitzner, Alex Simpkins, Jason Yang, Tanisha Martheswaran, Madilynn Perrigo, Chad B Crigger

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Article in World journal of urology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Aidan S WeitznerJames Buchanan Brady Urological Institute, Johns Hopkins University School of Medicine, 200 North Wolfe Street, Baltimore, MD, 21287, USA.
Alex SimpkinsJames Buchanan Brady Urological Institute, Johns Hopkins University School of Medicine, 200 North Wolfe Street, Baltimore, MD, 21287, USA.
Jason YangJames Buchanan Brady Urological Institute, Johns Hopkins University School of Medicine, 200 North Wolfe Street, Baltimore, MD, 21287, USA.
Tanisha MartheswaranJames Buchanan Brady Urological Institute, Johns Hopkins University School of Medicine, 200 North Wolfe Street, Baltimore, MD, 21287, USA.
Madilynn PerrigoJames Buchanan Brady Urological Institute, Johns Hopkins University School of Medicine, 200 North Wolfe Street, Baltimore, MD, 21287, USA.
Chad B CriggerJames Buchanan Brady Urological Institute, Johns Hopkins University School of Medicine, 200 North Wolfe Street, Baltimore, MD, 21287, USA. ccrigge2@jh.edu.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeTo assess the quality and engagement of bladder exstrophy content on YouTube using validated assessment tools, with the goal of identifying gaps in accessible, high-quality online education. These findings also have broader implications for the interplay of online information and rare conditions.

methodsWe reviewed the first 300 YouTube videos relevant to the term "bladder exstrophy" published prior to March 2025. Video quality was assessed using the Patient Education Materials Assessment Tool (PEMAT) and JAMA benchmark criteria. Engagement (views, likes, comments), presenter credentials, and targeted audience were extracted. Spearman correlation coefficients were used to examine the relationship between viewer engagement and quality scores.

results133 videos met inclusion criteria. Academic institutions produced 60% of videos. The median video length was 5 min with a median view count of 204. Patient-created videos had the highest Video Power Index (VPI), however this was not statistically significant (p = 0.11). Median understandability (PEMAT-V) was high (89), while actionability (PEMAT-A) was low (0). Academic videos had significantly higher PEMAT-V (p = 0.002) and JAMA benchmark scores (p < 0.001) compared to patient, layperson content. No significant correlations were found between video quality scores and user engagement metrics.

conclusionContent on bladder exstrophy garners limited viewership and engagement but remains an important educational resource. Videos produced by academic institutions demonstrated the highest quality scores, however, lacked actionable guidance. Higher quality was not associated with increased engagement, highlighting a critical gap in the availability of educational, user-friendly videos that support both understanding and anticipatory guidance for the management of bladder exstrophy.

Indexed as

Bladder ExstrophyPatient Education as TopicSocial MediaVideo RecordingHumansBladder exstrophyPediatric urologySocial media

Identifiers

PMID41964761
PMCPMC13070057

What Socratic holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.