Evidence map›Paper›PMID 41970056›Full record

ArticleFrontiers in neurology2026

Development and Validation of Quality of Life in Idiopathic Intracranial Hypertension (QOLIH) questionnaire.

Mona Hussein, Amr Hassan, Mona A F Nada, Zeinab Mohammed, Rabia Gokcen Gozubatik-Celik, Banu Bayramoglu, Bilge Piri Cinar, Aynur Ozge, Amna Ibrahim, Mona Ali and 6 more

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Article in Frontiers in neurology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

16 authors.

Mona HusseinDepartment of Neurology, Beni-Suef University, Beni-Suef, Egypt.
Amr HassanDepartment of Neurology, Cairo University, Cairo, Egypt.
Mona A F NadaDepartment of Neurology, Cairo University, Cairo, Egypt.
Zeinab MohammedDepartment of Public Health and Community Medicine, Beni-Suef University, Beni-Suef, Egypt.
Rabia Gokcen Gozubatik-CelikDepartment of Neurology, Bakırköy Prof. Dr. Mazhar Osman Training and Research Hospital for Mental Health and Neurological Disorders, University of Health Sciences, Istanbul, Türkiye.
Banu BayramogluDepartment of Neurology, Bakırköy Prof. Dr. Mazhar Osman Training and Research Hospital for Mental Health and Neurological Disorders, University of Health Sciences, Istanbul, Türkiye.
Bilge Piri CinarDepartment of Neurology, School of Medicine, Samsun University, Samsun, Türkiye.
Aynur OzgeHeadache Clinic, Mersin, Türkiye.
Amna IbrahimDepartment of Neurology, Beni-Suef University, Beni-Suef, Egypt.
Mona AliDepartment of Neurology, Beni-Suef University, Beni-Suef, Egypt.
Arife Çimen AtalarDepartment of Neurology, Istanbul Physical Therapy and Rehabilitation Training and Research Hospital, Istanbul, Türkiye.
Nevra ÖksüzDepartment of Neurology, Faculty of Medicine, Mersin University, Mersin, Türkiye.
Ahmet Hakan BayramDepartment of Neurology, School of Medicine, Samsun University, Samsun, Türkiye.
Ehab Ahmed HashishNeuropsychiatry Department, Suez Canal University, Ismailia, Egypt.
May M FayezNeurology Department, El Mounira General Hospital, Cairo, Egypt.
Rehab MagdyDepartment of Neurology, Cairo University, Cairo, Egypt.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Poor quality of life (QOL) has emerged as a key morbidity in patients with idiopathic intracranial hypertension (IIH). This work aimed to develop and validate an IIH-specific quality of life assessment tool. Methods: This cross-sectional study was conducted on 146 Egyptian and 156 Turkish patients with IIH. A 14-item questionnaire was created to assess QOL in those patients; Quality of Life in IIH patients questionnaire (QOLIH). The questionnaire items were hypothesized into two domains: one domain represents activities of daily living (ADL) (Q1-7 and Q12), and the other domain represents psycho-cognitive function (Q8-11, Q13, Q14). To assess the convergent validity of this questionnaire, the following tests were also employed: the Visual Analog Scale (VAS), Headache Impact Test-6 (HIT-6), Short Form-12 Health Survey (SF-12), and Low Vision Quality-of-Life Questionnaire (LVQOL). Results: Confirmatory factor analysis (CFA) revealed that standardized factor loadings were generally acceptable (>0.60) for Q1-12. However, Q13 and Q14 consistently displayed weak loadings (<0.40), suggesting their removal. Cronbach's Alpha for the total score of the QOLIH questionnaire (Q1-12) in the Egyptian patients was 0.940, and in the Turkish patients, it was 0.938, indicating excellent internal consistency. There were statistically significant correlations of a strong degree between QOLIH total score and HIT-6, SF-12, and LVQOL total scores in Egyptian and Turkish patients ( Conclusion: The final Arabic and Turkish versions of QOLIH questionnaire consist of 12 items. Both versions are valid and reliable tools that can be used in the assessment of QOL in IIH patients.

Indexed as

ADLIIHpsycho-cognitiveQOLQOLIH

Identifiers

PMID41970056
PMCPMC13065696

What Socratic holds

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