Evidence map›Paper›PMID 42041187›Full record

ArticleAge and ageing2026

Priorities for medication management information resources for people with dementia and carers: a community-driven approach using a modified Delphi method.

Jacqueline Wesson, Amanda J Cross, Karen Watson, Natali Jokanovic, Carl Schneider, Ardalan Mirzaei, Joanne Chung Man Lo, Mouna Sawan

Abstract read
In one paragraph

Article in Age and ageing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jacqueline WessonThe University of Sydney - Occupational Therapy, Sydney School of Health Sciences, Faculty of Medicine and Health, Susan Wakil Health Building, Western Ave, Camperdown, New South Wales, 2050, Australia.ORCID 0000-0002-4359-2443
Amanda J CrossMonash University - Centre for Medicine Use and Safety, Faculty of Pharmacy and Pharmaceutical Sciences, 381 Royal Parade, Parkville, Victoria, 3052, Australia.ORCID 0000-0001-6001-9211
Karen WatsonThe University of Sydney - Sydney Nursing School, Faculty of Medicine and Health, Susan Wakil Health Building, Western Ave, Camperdown, New South Wales, 2050, Australia.ORCID 0000-0003-4934-582X
Natali JokanovicMonash University - Centre for Medicine Use and Safety, Faculty of Pharmacy and Pharmaceutical Sciences, 381 Royal Parade, Parkville, Victoria, 3052, Australia.
Carl SchneiderThe University of Sydney - School of Pharmacy, Faculty of Medicine and Health, Camperdown, New South Wales, 2050, Australia.ORCID 0000-0002-2921-5609
Ardalan MirzaeiThe University of Sydney - School of Pharmacy, Faculty of Medicine and Health, Camperdown, New South Wales, 2050, Australia.
Joanne Chung Man LoThe University of Sydney - Sydney Pharmacy School, Faculty of Medicine and Health, Camperdown, New South Wales, 2050, Australia.ORCID 0009-0008-0576-2342
Mouna SawanUniversity of Sydney - School of Pharmacy School, Faculty of Medicine and Health, Pharmacy and Bank Building (A15), Science Road, Camperdown, New South Wales, 2050,  Australia.ORCID 0000-0002-0565-3524

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundManaging medications safely can be challenging for people with dementia and carers living in the community and medication errors can be a source of preventable harm. Resources to support people in medication management must address their information needs and prioritise these alongside those of broader stakeholders.

objectiveWe aimed to generate content statements for inclusion in tailored medication management literacy resources for people with dementia and carers. DESIGN AND

methodsUsing a community-based participatory research approach, we established a Medication Management Guidance Partnership: collaboration between the research team, research advisory group, and partner organisations. A mixed-method approach generated 49 statements (Phase 1) then we conducted an online modified Delphi process to gain consensus (Rounds 1 and 2) and prioritise statement order (Round 3) for inclusion in resources (Phase 2). Primary criterion for consensus required ≥80% of participants rating statements as important (≥7 on 9-point Likert-type scale). Secondary criteria assessed response variability, and statements were required to meet all criteria for inclusion.

resultsPeople with dementia (n = 5), carers (n = 5), healthcare professionals and/or national consumer organisation representatives (n = 13) reached consensus on 44 statements across six information domains. 'Information about decision-making' was ranked highest, followed by 'general question prompts', 'information about common medications', 'addressing complexities,' 'getting guidance in different languages' and 'additional supports.'

conclusionOur 'menu' of statements about medication management priorities, endorsed by end-users, can be used to guide development of resources to improve medication management and potentially reduce medication-related harm in this population.

Indexed as

CaregiversDementiaHealth LiteracyMedication ErrorsMedication Therapy ManagementCommunity-Based Participatory ResearchConsensusDelphi TechniqueHumansAlzheimer’s diseasecaregiverscodesigndementiadrug therapyolder people

Identifiers

PMID42041187
PMCPMC13112197

What Socratic holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.