Evidence map›Paper›PMID 42065822›Full record

ArticleJournal of community genetics2026

Meeting the demand: A collaborative approach in developing genetic counselling education in the Nordic countries.

Elen Siglen, Essi Ylistalo, Åshild Lunde, Arnhildur Tomasdottir, Marianne Lodahl, Charlotta Ingvoldstad Malmgren, Hakon Bjørn Hognason, Eirny T Thorolfsdottir, Mari Laaksonen, Vigdis Fjola Stefansdottir and 2 more

Abstract readLetter
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of community genetics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Elen SiglenWestern Norway Familial Cancer Center, Department of Medical Genetics, Haukeland University Hospital, Bergen, 5021, Norway.ORCID http://orcid.org/0000-0003-3486-1071
Essi YlistaloTampere University of Applied Sciences, Tampere, Finland.ORCID http://orcid.org/0009-0002-9824-518X
Åshild LundeDepartment of Global Public Health and Primary Care, University of Bergen, Bergen, 5009, Norway.ORCID http://orcid.org/0009-0000-2784-3700
Arnhildur TomasdottirDepartment of Genetics and Molecular Medicine, Landspitali University Hospital, Reykjavik, Iceland.
Marianne LodahlDepartment of Clinical Genetics, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.ORCID http://orcid.org/0009-0004-5399-152X
Charlotta Ingvoldstad MalmgrenCenter for Research Ethics and Bioethcs, Uppsala University, Uppsala, Sweden.ORCID http://orcid.org/0000-0003-0754-5065
Hakon Bjørn HognasonDepartment of Genetics and Molecular Medicine, Landspitali University Hospital, Reykjavik, Iceland.ORCID http://orcid.org/0009-0004-0627-6961
Eirny T ThorolfsdottirDepartment of Genetics and Molecular Medicine, Landspitali University Hospital, Reykjavik, Iceland.ORCID http://orcid.org/0000-0002-5569-9985
Mari LaaksonenTampere University of Applied Sciences, Tampere, Finland.
Vigdis Fjola StefansdottirDepartment of Genetics and Molecular Medicine, Landspitali University Hospital, Reykjavik, Iceland.ORCID http://orcid.org/0000-0003-4451-3126
Cathrine BjorvatnWestern Norway Familial Cancer Center, Department of Medical Genetics, Haukeland University Hospital, Bergen, 5021, Norway.ORCID http://orcid.org/0000-0003-1454-4925
Rebecka PestoffDepartment of Biomedical and Clinical Sciences, Linköping University, Linköping, Sweden. rebecka.pestoff@liu.se.ORCID http://orcid.org/0000-0001-7192-4532

Funding

NordPlus Higher Education Programme NPHE-2024-10042, NPHE-2025-10024, NPHE-2025-10038
6 · The paper itself

Abstract

This program report describes the establishment of the Nordic Network for Genetic Counselling (NNGC) and the ongoing work toward developing a joint Nordic MSc in Genetic Counselling and increasing awareness of genetic counselling in the Nordic countries. Founded officially in 2024, the NNGC brings together universities and university hospitals across the Nordic region and draws on members varied clinical and academic backgrounds. With financial support from NordPlus, the network has built a collaborative framework based on shared responsibility, rotating coordination, and regular digital and in-person meetings. Using the previously EBMG accredited Swedish MSc as a point of reference, the network has a curriculum that aligns with international standards and Nordic priorities related to sustainability, equity, and educational quality. Formal agreements between participating institutions have secured engagement and provided a basis for the development of the master's programme. The learning points from this collaborative work, including key facilitators, identified barriers, and recommendations when pursuing similar initiatives are presented. Although still under development, the planned Nordic MSc, expected to launch in 2027, demonstrates how regional/international collaboration can strengthen specialized education and support the future workforce needs of precision medicine.

Indexed as

Education developmentGenetic counsellingJoint study programmesMaster educationNordic regionSustainable education

Identifiers

PMID42065822
PMCPMC13135020

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.