Evidence map›Paper›PMID 42101358›Full record

ArticleBritish journal of health psychology2026

"She just wants to be a normal kid": Adolescents with inflammatory bowel disease and their caregivers' transition from paediatric to adult care.

Mikayla de Gooyer, Matthew I Mackay, Antonina Mikocka-Walus, Yao Coitinho Biurra, Catherine Emerson, Anna Klas, Leanne Raven, Wayne Massuger, Edward M Giles, Subhadra Evans

Abstract read
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In one paragraph

Article in British journal of health psychology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Mikayla de GooyerSchool of Psychology, Deakin University, Burwood, Victoria, Australia.
Matthew I MackaySchool of Psychology, Deakin University, Burwood, Victoria, Australia.
Antonina Mikocka-WalusSchool of Psychology, Deakin University, Burwood, Victoria, Australia.ORCID https://orcid.org/0000-0003-4864-3956
Yao Coitinho BiurraSchool of Psychology, Deakin University, Burwood, Victoria, Australia.
Catherine EmersonSchool of Psychology, Deakin University, Burwood, Victoria, Australia.
Anna KlasSchool of Psychology, Deakin University, Burwood, Victoria, Australia.
Leanne RavenCrohn's & Colitis Australia, Melbourne, Victoria, Australia.
Wayne MassugerCrohn's & Colitis Australia, Melbourne, Victoria, Australia.
Edward M GilesCentre for Innate Immunity and Infectious Diseases, Hudson Institute of Medical Research, Melbourne, Victoria, Australia.
Subhadra EvansSchool of Psychology, Deakin University, Burwood, Victoria, Australia.

Funding

Department of Health and Aged Care, Australian Government
6 · The paper itself

Abstract

objectivesAdolescents with inflammatory bowel disease (IBD) experience disruptions to normal adolescent development. Lack of preparation for transition from paediatric to adult care can have negative biopsychosocial outcomes. We aimed to explore adolescents' perspectives on how IBD affects their lives. Additionally, we aimed to understand adolescents and their parents' views on transition from paediatric to adult IBD care.

designQualitative study. Adolescents and parents participated in semi-structured interviews together.

methodsParticipants included eight adolescents with IBD (four females; four with Crohn's disease, two with ulcerative colitis and two with IBD-U; mean age = 16) and their parent(s) (n = 9). Data were analyzed using template thematic analysis.

resultsThree themes were identified that reflected how IBD conflicts with typical adolescent development because of the need for careful planning to manage the disease and its symptoms (e.g., loss of bowel control, fatigue). They also described the active role parents currently play in managing their child's IBD, from managing medication to organizing appointments and communicating with healthcare professionals. Anxiety and apprehension of adolescent participants towards transitioning from adolescent to adult care were also captured.

conclusionsHealthcare providers and carers must work together with adolescents with IBD to ensure they are ready for adult care, where they will need to take sole responsibility for managing their chronic condition.

Indexed as

CaregiversInflammatory Bowel DiseasesParentsTransition to Adult CareAdolescentAdultFemaleHumansInterviews as TopicMaleQualitative ResearchYoung Adultadolescenceinflammatory bowel diseasetransition care

Identifiers

PMID42101358
PMCPMC13155184

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.