Evidence mapPaperPMID 42234860Full record

ArticleRheumatology (Oxford, England)2026

Development of a mobile health application to support the management of paediatric FMF.

Yunus Emre Bayrak, Hikmetcan Özcan, Fatih Pir, Nihal Şahin, Duygu Aydın, Hafize Emine Sönmez

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Article in Rheumatology (Oxford, England), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Yunus Emre BayrakFaculty of Medicine, Department of Pediatric Rheumatology, Kocaeli University, Kocaeli, Turkey.
Hikmetcan ÖzcanDepartment of Computer Engineering, Kocaeli University, Kocaeli, Turkey.
Fatih PirDepartment of Computer Engineering, Kocaeli University, Kocaeli, Turkey.
Nihal ŞahinFaculty of Medicine, Department of Pediatric Rheumatology, Kocaeli University, Kocaeli, Turkey.ORCID 0000-0002-2122-6952
Duygu AydınFaculty of Medicine, Department of Pediatric Rheumatology, Kocaeli University, Kocaeli, Turkey.ORCID 0000-0001-8869-4614
Hafize Emine SönmezFaculty of Medicine, Department of Pediatric Rheumatology, Kocaeli University, Kocaeli, Turkey.ORCID 0000-0002-9186-3068

Funding

A4 Research and Development Program 38979Turkish Health Institutes (TUSEB)
6 · The paper itself

Abstract

objectiveFMF is highly prevalent in Mediterranean countries and represents a substantial proportion of paediatric rheumatology patients. Colchicine, the mainstay of treatment, requires lifelong daily use, yet long-term adherence remains challenging, leading to recurrent attacks and increased healthcare burden. This study aimed to develop a freely downloadable mobile application to improve medication adherence by providing reminders and enabling direct communication with physicians.

methodsThe application was designed as a structured medication-timing and monitoring tool, providing time-specific medication reminders, real-time intake confirmation ('taken/missed') and digital adherence tracking. The user interface was tailored to the needs of patients and parents, considering children's attention span, parental workload and health literacy. Following pilot testing in seven volunteer patients, the application was refined based on user feedback. Physicians used a web-based panel to register patients, define prescriptions and treatment schedules, and assign calendar-based appointments. Medication adherence was assessed using the MASIF scale, and disease activity was evaluated using the AIDAI score. A total of 93 patients with FMF were included in the study.

resultsBefore application use, adherence was low, with a median MASIF score of 44 and most patients demonstrating poor adherence. After implementation, MASIF scores significantly improved at 3, 6 and 12 months, with a marked reduction in poorly adherent patients (P < 0.001). AIDAI scores and attack frequency significantly decreased, and no patient had an AIDAI score >9 during follow-up. Agreement between application-measured adherence and MASIF scores was excellent (ICC > 0.90).

conclusionMobile reminder applications are low-cost, accessible digital health tools with strong potential to enhance medication adherence in FMF patients.

Indexed as

ColchicineDrug MonitoringFamilial Mediterranean FeverMedication AdherenceMobile ApplicationsReminder SystemsAdherence InterventionsAdolescentChildChild, PreschoolDigital HealthFemaleHumansMaleTelemedicineColchicineFMFmedication adherencemobile applicationspatient monitoring

Identifiers

PMID42234860
PMCPMC13262799

What Socratic holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.