Evidence map›Paper›PMID 42293121›Full record

ArticleNeuroscience applied2026

Involvement of persons with lived experience in mental health research: recommendations.

K Kleine Schaars, Allan H Young, Ramona Moldovan, Erik Van der Eycken, Falk Schuster, Jan Klopper, Urs Heilbronner, Martien J H Kas, PSY-PGx Consortium, R van Westrhenen

Abstract read
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Article in Neuroscience applied, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

K Kleine SchaarsOutpatient Clinic Pharmacogenetics, Parnassia Psychiatric Institute, Amsterdam, the Netherlands.
Allan H YoungDivision of Psychiatry, Imperial College London, United Kingdom.
Ramona MoldovanDivision of Evolution and Genomic Sciences, School of Biological Science, University of Manchester, United Kingdom.
Erik Van der EyckenGlobal Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe), Brussels, Belgium.
Falk SchusterGlobal Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe), Brussels, Belgium.
Jan KlopperGlobal Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe), Brussels, Belgium.
Urs HeilbronnerInstitute of Psychiatric Phenomics and Genomics (IPPG), LMU University Hospital, LMU Munich, Germany.
Martien J H KasGroningen Institute for Evolutionary Life Sciences, University of Groningen, the Netherlands.
PSY-PGx Consortium
R van WestrhenenOutpatient Clinic Pharmacogenetics, Parnassia Psychiatric Institute, Amsterdam, the Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Although the benefits of involvement of persons with lived experience in mental health research have been widely demonstrated, consistent implementation remains challenging. During the 36th ECNP congress in Barcelona, a session was hosted, discussing the collaboration between clinicians, researchers and the European patient organisation GAMIAN-Europe within the PSY-PGx Project. This short communication presents key themes emerging from this session and presents recommendations to support involvement of persons with lived experience in mental health research. Within the PSY-PGx project, persons with lived experience were involved from early on, which has contributed to active patient participation throughout the project. The recommendations may guide future research projects in optimizing patient involvement.

Identifiers

PMID42293121
PMCPMC13262342

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.