Evidence mapPaperPMID 42321893Full record

ArticleResearch involvement and engagement2026

Equitable partnership: patient and public involvement and engagement and community engagement in mental health research in Pakistan.

Shumaila Hamid, Syeda Fatima Jamal, Syed Muhammad Uzair Shah, Ishfaq Tariq Azeemi, Abdul Jalil Khan, Saima Sheikh, Taha Ayub, Nishani Fonseka, Abbie Milner, Mian Mukhtar Ul Haq Azeemi and 6 more

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Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

16 authors.

Shumaila HamidInstitute of Public Health and Social Sciences, Khyber Medical University, Peshawar, Pakistan.
Syeda Fatima JamalInstitute of Public Health and Social Sciences, Khyber Medical University, Peshawar, Pakistan.
Syed Muhammad Uzair ShahDepartment of Sociology, University of Peshawar, Peshawar, Pakistan.
Ishfaq Tariq AzeemiInstitute of Family Medicine, Khyber Medical University, Peshawar, Pakistan.
Abdul Jalil KhanInstitute of Family Medicine, Khyber Medical University, Peshawar, Pakistan. jalilkhan@kmu.edu.pk.
Saima SheikhNuffield Department of Orthopaedics, University of Oxford, Oxford, UK.
Taha AyubInstitute of Family Medicine, Khyber Medical University, Peshawar, Pakistan.
Nishani FonsekaSchool of Medicine, Keele University, Staffordshire, UK.
Abbie MilnerSchool of Medicine, Keele University, Staffordshire, UK.
Mian Mukhtar Ul Haq AzeemiMedical Teaching Institute, Lady Reading Hospital, Peshawar, Pakistan.
Muhammad Firaz KhanInstitute of Public Mental Health and Behavioral Sciences, Khyber Medical University, Peshawar, Pakistan.
Sherdil KhanMedical Teaching Institute, Khyber Teaching Hospital, Peshawar, Pakistan.
Ahmad Ali NaumanPrime Institute of Public Health, Peshawar, Pakistan.
Noor SanauddinDepartment of Sociology, University of Peshawar, Peshawar, Pakistan.
Saeed FarooqSchool of Medicine, Keele University, Staffordshire, UK.
Krysia CanvinSchool of Medicine, Keele University, Staffordshire, UK. k.canvin@keele.ac.uk.

Funding

Medical Research Council MR/T040378/1
6 · The paper itself

Abstract

BACKGROUND &

aimPatient and public involvement and engagement (PPIE), alongside community engagement, are crucial in mental health research to ensure relevance and impact. This study, part of the Medical Research Council (MRC) UK-funded, Traditional HEalers working with primary care and mental Health for early intervention in Psychosis in young pErsons (THE HOPE) project, describes the implementation of PPIE and community engagement in THE HOPE project and their impact on the project and community.

methodsA six members advisory group, including individuals with lived experience of psychosis, caregivers, and a TSH, contributed to the study design, topic guides, and community engagement initiatives. Thirty-four community engagement sessions were conducted in four phases, utilizing sermons, posters, pamphlets, and direct outreach. RESULTS &

conclusionThe thematic analysis highlighted key issues like medication adherence, service delivery, and the role of traditional healers and primary care. Insights from the advisory group informed recommendations for shared decision-making and capacity-building, emphasizing the importance of inclusive, culturally relevant, and collaborative approaches in mental health research.

Indexed as

Community engagementEarly interventionLMICsMental health researchPPIEPrimary carePsychosisTraditional healers

Identifiers

PMID42321893
PMCPMC13282870

What Socratic holds

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LicenceCC BY
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.