Evidence map›Paper›PMID 42341205›Full record

SynthesisAge and ageing2026

The experiences of living with dementia within an under-served geographical area: a systematic review and qualitative synthesis.

Jessica Kay, Greta Rait, Alice Burnand, Abi Woodward, Thomas Littlejohns, Megan Armstrong

Abstract readSystematic Review
In one paragraph

Synthesis in Age and ageing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jessica KayResearch Department of Primary Care and Population Health, UCL Medical School (Royal Free Campus), University College London, London, United Kingdom of Great Britain and Northern Ireland.ORCID 0009-0000-0514-2663
Greta RaitResearch Department of Primary Care and Population Health, UCL Medical School (Royal Free Campus), University College London, London, United Kingdom of Great Britain and Northern Ireland.ORCID 0000-0002-7216-7294
Alice BurnandResearch Department of Primary Care and Population Health, UCL Medical School (Royal Free Campus), University College London, London, United Kingdom of Great Britain and Northern Ireland.ORCID 0000-0002-9361-2457
Abi WoodwardCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London,  London, United Kingdom of Great Britain and Northern Ireland.ORCID 0000-0001-6250-9070
Thomas LittlejohnsNuffield of Department of Population Health, University of Oxford, Oxford, United Kingdom of Great Britain and Northern Ireland.ORCID 0000-0003-1177-6923
Megan ArmstrongResearch Department of Primary Care and Population Health, UCL Medical School (Royal Free Campus), University College London, London, United Kingdom of Great Britain and Northern Ireland.ORCID 0000-0001-6773-9393

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundDementia affects millions globally and presents diverse challenges shaped by personal, social and environmental factors. People living in under-served rural, coastal and deprived communities often face additional barriers to diagnosis, care and support, limiting person-centred approaches. These inequalities can negatively impact quality of life, social inclusion and health outcomes. Whilst dementia experiences have been widely studied, the influence of geographical context remains underexplored. Understanding this is essential to improving equitable, person-centred care across diverse settings.

methodsMEDLINE, PsycInfo, Cochrane Library and Web of Science were searched from inception in February 2025 for qualitative studies on people's experiences of living with dementia in rural, coastal or deprived areas. The review was not limited by country or date. Data were coded and thematically synthesised using NVivo.

findingsSeventy-three full texts were screened using Rayyan and 15 studies were included in the review. Thirteen studies were based in rural areas and two in deprived areas. No included studies were set in coastal areas. Four analytical themes were developed: navigating stigma, privacy and disclosure, navigating fragmented healthcare systems and services, lack of appropriate and accessible services and positive experiences of managing dementia. DISCUSSION: Key barriers to managing dementia included limited service availability, unsuitable support, stigma and logistical challenges. Findings underscored the need for person-centred, context-sensitive care that considers geographic, social and cultural factors. Future research should further explore diverse under-served settings to inform equitable dementia care particularly in deprived and coastal areas.

Indexed as

DementiaHealth Services AccessibilityHealthcare DisparitiesHumansQualitative ResearchQuality of LifeSocial Stigmadementiaolder peoplequalitative researchsystematic reviewunderserved areas

Identifiers

PMID42341205
PMCPMC13293246

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.