ArticleNutrients2026
How Well Is Blood Phenylalanine Controlled in Maternal PKU in Europe? Results from 102 Pregnancies.
Abstract readMulticenter Study
In one paragraph
Article in Nutrients, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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What it found
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Authors and funding
32 authors.
Alex PintoBirmingham Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.ORCID 0000-0002-8206-0829
Kirsten AhringDepartments of Paediatrics and Clinical Genetics, PKU Clinic, Copenhagen University Hospital, Rigshospitalet, Blegdamsvej 9, 2100 Copenhagen, Denmark.ORCID 0000-0002-6518-2226
Manuela Ferreira AlmeidaCentro de Genética Médica, Unidade Local de Saúde de Santo António, E.P.E. (ULSSA), 4099-028 Porto, Portugal.ORCID 0000-0002-1683-1314
Catherine AshmoreBirmingham Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.
Sarah BaileyAll Wales Inherited Metabolic Disease Service, University Hospital of Wales, Heath Park Way, Cardiff CF14 4XW, UK.
Amaya Bélanger-QuintanaUnidad de Enfermedades Metabólicas Congénitas, Hospital Universitario Ramón y Cajal, 28034 Madrid, Spain.ORCID 0000-0003-0102-8956
Alberto BurlinaDivision of Inherited Metabolic Diseases, Reference Centre Expanded Newborn Screening, Department of Women's and Children's Health, University Hospital, 35128 Padova, Italy.ORCID 0000-0001-7724-137X
Duncan ColeAll Wales Inherited Metabolic Disease Service, University Hospital of Wales, Heath Park Way, Cardiff CF14 4XW, UK.
Clare DaleUniversity Hospital Birmingham, National Health Service (NHS) Foundation Trust, Mindelsohn Way, Birmingham B15 2GW, UK.
Anne DalyBirmingham Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.ORCID 0000-0003-2579-8699
Esther van DamDivision of Metabolic Diseases, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, Hanzeplein 1, 9700 RB Groningen, The Netherlands.
Charlotte DawsonUniversity Hospital Birmingham, National Health Service (NHS) Foundation Trust, Mindelsohn Way, Birmingham B15 2GW, UK.ORCID 0000-0002-9621-6468
Sharon EvansBirmingham Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.ORCID 0000-0002-7654-3621
Sarah FirmanGuy's & St Thomas' NHS Foundation Trust, Westminster Bridge Rd, London SE1 7EH, UK.ORCID 0000-0001-7257-700X
Suzanne FordNorth Bristol Trust, Southmead Rd, Bristol BS10 5NB, UK.ORCID 0000-0003-1041-2116
Diane GreenSalford Royal NHS Foundation Trust, Stott Ln, Salford M6 8HD, UK.
Tarekegn GeberhiwotUniversity Hospital Birmingham, National Health Service (NHS) Foundation Trust, Mindelsohn Way, Birmingham B15 2GW, UK.
Yteke HoekstraDivision of Metabolic Diseases, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, Hanzeplein 1, 9700 RB Groningen, The Netherlands.
Sarah HoweUniversity Hospital Birmingham, National Health Service (NHS) Foundation Trust, Mindelsohn Way, Birmingham B15 2GW, UK.
Fatma IlgazDepartment of Nutrition and Dietetics, Faculty of Health Sciences, Hacettepe University, 06100 Ankara, Turkey.ORCID 0000-0002-6518-0255
Christian LoroDivision of Dietetic and Clinical Nutrition, Department of Medicine (DIMED), University Hospital of Padua, 35128 Padova, Italy.ORCID 0000-0002-5924-2034
Nicola McStravickThe Royal Hospitals Belfast, Belfast Health and Social Care Trust, Grosvenor Road, Belfast BT12 6BA, UK.
Radha RamachandranGuy's & St Thomas' NHS Foundation Trust, Westminster Bridge Rd, London SE1 7EH, UK.ORCID 0000-0003-0366-821X
Katie RawlinsGuy's & St Thomas' NHS Foundation Trust, Westminster Bridge Rd, London SE1 7EH, UK.
Louise RobertsonUniversity Hospital Birmingham, National Health Service (NHS) Foundation Trust, Mindelsohn Way, Birmingham B15 2GW, UK.ORCID 0000-0002-5127-8454
Júlio César RochaNutrition and Metabolism, NOVA Medical School|Faculdade de Ciências Médicas NMS|FCM, Universidade Nova de Lisboa, 1169-056 Lisboa, Portugal.ORCID 0000-0002-4977-8345
Iris RodenburgDivision of Metabolic Diseases, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, Hanzeplein 1, 9700 RB Groningen, The Netherlands.
Danja Schulenburg-BrandAll Wales Inherited Metabolic Disease Service, University Hospital of Wales, Heath Park Way, Cardiff CF14 4XW, UK.
Francjan J van SpronsenDivision of Metabolic Diseases, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, Hanzeplein 1, 9700 RB Groningen, The Netherlands.ORCID 0000-0002-3773-1929
Gisela WilcoxSalford Royal NHS Foundation Trust, Stott Ln, Salford M6 8HD, UK.ORCID 0000-0002-8953-2403
Alison WoodallSalford Royal NHS Foundation Trust, Stott Ln, Salford M6 8HD, UK.
Anita MacDonaldBirmingham Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.ORCID 0000-0002-2896-3509
Funding
BioMarin (United Kingdom) A Biomarin independent research grant was used for the travelling and publication costs of the study. The sponsor had no influence on the creation and development of the research project.
Abstract
PubMed holds no abstract for this paper.
Indexed as
PhenylalaninePhenylketonuria, MaternalPhenylketonuriasPregnancy ComplicationsAdultBiopterinsDietary ProteinsEuropeFemaleHumansPregnancyRetrospective StudiesBiopterinsDietary ProteinsPhenylalaninenatural protein intakephenylalanine intakephenylketonuriaPKUprotein equivalent from protein substitute intaketotal protein intake
Identifiers
What Socratic holds
Textmetadata
LicenceCC BY
Read underepoch 390
Registered trials
None linked
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.