Evidence map›Paper›PMID 42473546›Full record

ReviewAlzheimer's & dementia (New York, N. Y.)

Diversity and inclusivity in Australian dementia prevention research: A mixed methods review.

Olivia E Giameos, Maddison L Mellow, Diana Karamacoska, Aaron Davis, Paul A Gardiner, Eddy Roccati, Kaarin J Anstey, Nicolas Cherbuin, Jessica M Adsett, Nikki-Anne Wilson and 20 more

Abstract readReview
In one paragraph

Review in Alzheimer's & dementia (New York, N. Y.). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

30 authors.

Olivia E GiameosAlliance for Research in Exercise, Nutrition and Activity (ARENA) Research Centre, Allied Health and Human Performance Adelaide University Adelaide Australia.
Maddison L MellowAlliance for Research in Exercise, Nutrition and Activity (ARENA) Research Centre, Allied Health and Human Performance Adelaide University Adelaide Australia.ORCID https://orcid.org/0000-0002-0514-8261
Diana KaramacoskaNICM Health Research Institute Western Sydney University Westmead Australia.
Aaron DavisSchool of Architecture and Built Environment College of Creative Arts Design and Humanities Adelaide University Adelaide Australia.
Paul A GardinerSchool of Public Health The University of Queensland University Drive Brisbane Australia.
Eddy RoccatiWicking Dementia Research and Education Centre University of Tasmania Hobart Australia.
Kaarin J AnsteyUNSW Ageing Futures Institute University of New South Wales Sydney Australia.
Nicolas CherbuinNational Centre for Epidemiology and Population Health Australian National University Canberra Australia.
Jessica M AdsettQIMR Berghofer Medical Research Institute Brisbane Australia.
Nikki-Anne WilsonUNSW Ageing Futures Institute University of New South Wales Sydney Australia.
Kylie RadfordUNSW Ageing Futures Institute University of New South Wales Sydney Australia.
Louise LavrencicUNSW Ageing Futures Institute University of New South Wales Sydney Australia.
Perminder S SachdevCentre for Healthy Brain Ageing (CHeBA), Discipline of Psychiatry and Mental Health, School of Clinical Medicine Faculty of Medicine and Health UNSW Sydney Sydney Australia.
Simone ReppermundCentre for Healthy Brain Ageing (CHeBA), Discipline of Psychiatry and Mental Health, School of Clinical Medicine Faculty of Medicine and Health UNSW Sydney Sydney Australia.
Suraj SamtaniCentre for Healthy Brain Ageing (CHeBA), Discipline of Psychiatry and Mental Health, School of Clinical Medicine Faculty of Medicine and Health UNSW Sydney Sydney Australia.
Annabel P MatisonCentre for Healthy Brain Ageing (CHeBA), Discipline of Psychiatry and Mental Health, School of Clinical Medicine Faculty of Medicine and Health UNSW Sydney Sydney Australia.
Zara A PageCentre for Healthy Brain Ageing (CHeBA), Discipline of Psychiatry and Mental Health, School of Clinical Medicine Faculty of Medicine and Health UNSW Sydney Sydney Australia.
Philip J BatterhamCentre for Mental Health Research The Australian National University Canberra Australia.
Sophie C AndrewsThompson Institute University of the Sunshine Coast Birtinya Australia.
Alex Bahar-FuchsSchool of Psychology Deakin University Melbourne Australia.
Michelle K LuptonQIMR Berghofer Medical Research Institute Brisbane Australia.
Andrew PipingasCentre for Mental Health and Brain Sciences Swinburne University of Technology Hawthorn Australia.
Adrienne WithallSchool of Psychology Faculty of Science University of New South Wales Sydney Australia.
Belinda M BrownCentre for Healthy Ageing Health Futures Institute Murdoch University Murdoch Australia.
Helen MacphersonInstitute for Physical Activity and Nutrition School of Exercise and Nutrition Sciences Deakin University Burwood Australia.
Hannah A D KeageSchool of Psychology College of Education Behavioural and Social Sciences Adelaide University Magill Australia.
Britt BurtonAlliance for Research in Exercise, Nutrition and Activity (ARENA) Research Centre, Allied Health and Human Performance Adelaide University Adelaide Australia.
James C VickersWicking Dementia Research and Education Centre University of Tasmania Hobart Australia.
David W DunstanInstitute for Physical Activity and Nutrition School of Exercise and Nutrition Sciences Deakin University Burwood Australia.
Ashleigh E SmithAlliance for Research in Exercise, Nutrition and Activity (ARENA) Research Centre, Allied Health and Human Performance Adelaide University Adelaide Australia.

Funding

A global epidemiology of cognitive impairment and dementia due to Alzheimer's disease and related disorders: the COSMIC CollaborationR01AG057531 · NIA · UNIVERSITY OF NEW SOUTH WALES · PI Perminder S SACHDEV · 2023 to 2026
$5.9M
NIA NIH HHS R01 AG057531
6 · The paper itself

Abstract

Minoritized communities are disproportionately impacted by modifiable dementia risk factors but are underrepresented in dementia research globally. In Australia, the number of dementia prevention cohort and intervention studies has rapidly increased in the past two decades, yet the representation of minoritized groups has not been synthesized. The aims of this mixed-methods review were to summarize the demographic characteristics of participants involved in Australian dementia prevention-focused cohort and intervention studies. A systematic search of published literature, funded grant outcomes, and clinical trial registrations was conducted in October 2023 and updated in February 2025 to identify any Australia-based cohort or intervention studies which focused on dementia prevention. Data custodians of eligible studies were contacted and invited to submit de-identified participant-level data for these studies. The demographic characteristics of participants involved in published manuscripts and submitted participant-level data were synthesized. These data were then presented to 23 Australian dementia prevention researchers during a 2-h workshop in March 2025. Using co-creation methodologies, the workshop aimed to generate consensus-based recommendations for governments, institutions, and individual researchers to improve inclusivity and representativeness in future dementia prevention research. Twenty-eight published dementia prevention studies were summarized alongside fourteen studies for which de-identified participant-level data were submitted. Compared to the modern Australian population, participants enrolled in dementia prevention studies have been predominantly female, highly educated, and less diverse in terms of culture, language, ethnicity and gender. Thirty-seven recommendations were generated by Australian researchers and ranked by importance, providing actionable changes for government and institutional policy and researcher practice. This review identified that participants enrolled in Australian dementia prevention research studies do not accurately represent those most at risk for dementia in the general population. Changes to recruitment and engagement practices and policies are recommended to improve the representativeness and inclusivity of Australian dementia prevention research.

Indexed as

ageingdementiadiversityminoritized populationsprevention

Identifiers

PMID42473546
PMCPMC13380669

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.