Evidence map›Paper›PMID 42480073›Full record

ArticleJMIR formative research2026

Beyond Teleconsultation: Exploring the Role of Mobile Health Technologies in Duchenne Muscular Dystrophy.

Eliza Wasilewska, Alessandro Onofri, Andrzej Wasilewski, Jan Wasilewski, Marek Niedoszytko, Jacek Nasiłowski, Sylwia Małgorzewicz

Abstract read
In one paragraph

Article in JMIR formative research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Eliza WasilewskaDepartment of Allergology, Medical University of Gdańsk, Marii Skłodowskiej-Curie 3a, Gdańsk, 80-210, Poland.ORCID 0000-0002-5288-0586
Alessandro OnofriPediatric Pulmonology & Cystic Fibrosis Unit, Respiratory Intermediate Care Unit, Sleep and Long-Term Ventilation Unit, Bambino Gesù Children's Hospital, Scientific Institute for Research, Rome, Italy.ORCID 0000-0001-6527-0317
Andrzej WasilewskiStudent Scientific Association of Medical Chemistry and Immunochemistry, Wroclaw Medical University, Marii Skłodowskiej-Curie 48/50, Wrocław, 59-369, Poland.ORCID 0000-0001-9908-6921
Jan WasilewskiRochester Institute of Technology, Rochester, NY, United States.ORCID 0000-0002-1990-9279
Marek NiedoszytkoDepartment of Allergology, Medical University of Gdańsk, Marii Skłodowskiej-Curie 3a, Gdańsk, 80-210, Poland.ORCID 0000-0003-1089-1911
Jacek NasiłowskiDepartment of Internal Medicine, Pulmonary Diseases and Allergy, Medical University of Warsaw, Warsaw, Poland.ORCID 0009-0003-2404-6476
Sylwia MałgorzewiczDepartment of Clinical Nutrition, Medical University of Gdańsk, Debinki, Gdańsk, 80-211, Poland, 48 6016776.ORCID 0000-0001-8773-9649

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Unlabelled: Duchenne muscular dystrophy (DMD) is a progressive, multisystem disease requiring long-term monitoring of respiratory, cardiac, and functional status. Advances in care have extended survival, increasing the need for continuous, coordinated management. In parallel, digital health technologies have enabled remote monitoring and data collection outside traditional clinical settings. This Viewpoint examines the role of device-based remote monitoring in DMD and argues that it should be understood as an emerging multisystem digital surveillance framework rather than a collection of isolated technologies. This Viewpoint is based on a synthesis of published literature on device-based remote monitoring and digital health technologies in DMD and experiences at our center. The aim was to outline the current clinical and technological landscape and support an interpretive perspective. Device-based monitoring in DMD encompasses a range of technologies, including home spirometry, ventilator-integrated telemonitoring, wearable activity sensors, cardiac rhythm monitoring, and interactive rehabilitation systems. These approaches enable longitudinal assessment of physiological and functional parameters in real-world settings. However, the current evidence base is heterogeneous and largely limited to feasibility studies, small cohorts, and extrapolated data. While data acquisition is technically feasible and increasingly available, integration into clinical workflows remains constrained by the lack of validated digital biomarkers, standardized monitoring frameworks, and interoperable data systems. Remote monitoring in DMD is evolving toward a connected, multisystem model of disease surveillance. Its clinical impact will depend on the validation of digital end points, development of decision support frameworks, and integration into multidisciplinary care pathways. Bridging the gap between data generation and clinical decision-making remains a key priority for future research and implementation. These findings support a shift from isolated technologies toward a coordinated, clinically integrated model of multisystem care in DMD.

Indexed as

Muscular Dystrophy, DuchenneTelemedicineDigital HealthHumansMonitoring, PhysiologicRemote ConsultationRemote Patient MonitoringDMDDuchenne muscular dystrophymHealthmobile healthmobile health technologiesremote monitoring

Identifiers

PMID42480073
PMCPMC13387638

What Socratic holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.