Evidence mapPaperPMID 42492482Full record

ArticleJournal of medical Internet research2026

Battling the Bots and Defending Against Fraudulent Responses in an International Community-Engaged Web-Based Survey With People Living With Long COVID: Methodological Study.

Kiera McDuff, Tai-Te Su, Darren A Brown, Jessica M Martin, Soo Chan Carusone, Sarah O'Connell, Imelda O'Donovan, Natalie St Clair-Sullivan, Liam Townsend, Susie Goulding and 14 more

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

24 authors.

Kiera McDuffDepartment of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 160-500 University Avenue, Toronto, ON, M5G 1V7, Canada.ORCID http://orcid.org/0000-0003-0331-6919
Tai-Te SuDepartment of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 160-500 University Avenue, Toronto, ON, M5G 1V7, Canada.ORCID http://orcid.org/0000-0002-7166-0247
Darren A BrownChelsea and Westminster Hospital NHS Foundation Trust, London, United Kingdom.ORCID http://orcid.org/0000-0002-4956-243X
Jessica M MartinDepartment of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 160-500 University Avenue, Toronto, ON, M5G 1V7, Canada.ORCID http://orcid.org/0009-0006-7705-421X
Soo Chan CarusoneMcMaster Collaborative for Health and Aging, McMaster University, Hamilton, ON, Canada.ORCID http://orcid.org/0000-0003-3977-0523
Sarah O'ConnellLong COVID Advocacy Ireland, Dublin, Ireland.ORCID http://orcid.org/0009-0008-7283-3251
Imelda O'DonovanLong COVID Advocacy Ireland, Dublin, Ireland.ORCID http://orcid.org/0009-0000-6475-5099
Natalie St Clair-SullivanCicely Saunders Institute, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King's College London, London, United Kingdom.ORCID http://orcid.org/0000-0003-1097-0759
Liam TownsendDepartment of Infectious Diseases, St. James's Hospital, Dublin, Ireland.ORCID http://orcid.org/0000-0002-7089-0665
Susie GouldingCOVID Long Haulers Support Group, Cambridge, ON, Canada.ORCID http://orcid.org/0009-0006-7970-0721
Mary KellyLong COVID Physio, London, United Kingdom.ORCID http://orcid.org/0009-0009-5423-7883
Lisa McCorkellPatient-Led Research Collaborative, Oakland, CA, United States.ORCID http://orcid.org/0000-0002-3261-6737
Hannah WeiPatient-Led Research Collaborative, Ottawa, ON, Canada.ORCID http://orcid.org/0000-0002-0307-7498
Margaret O'HaraLong Covid Support UK, Birmingham, United Kingdom.ORCID http://orcid.org/0000-0001-9812-5183
Leticia SoaresPatient-Led Research Collaborative, Oakland, CA, United States.ORCID http://orcid.org/0000-0002-6933-8048
Lisa AveryDepartment of Biostatistics, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-8431-5143
Ciaran BannanDepartment of Infectious Diseases, St. James's Hospital, Dublin, Ireland.ORCID http://orcid.org/0000-0002-9288-8574
Colm BerginDepartment of Infectious Diseases, St. James's Hospital, Dublin, Ireland.ORCID http://orcid.org/0000-0002-6651-1132
Richard HardingCicely Saunders Institute, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King's College London, London, United Kingdom.ORCID http://orcid.org/0000-0001-9653-8689
Julia NathansonDepartment of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 160-500 University Avenue, Toronto, ON, M5G 1V7, Canada.ORCID http://orcid.org/0009-0006-1139-0616
Patricia SolomonSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.ORCID http://orcid.org/0000-0002-5014-0795
Angela M CheungInstitute of Health Policy, Management and Evaluation (IHPME), Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.ORCID http://orcid.org/0000-0001-8332-0744
Jaimie VeraDepartment of Global Health and Infection, Brighton and Sussex Medical School, University of Sussex, Brighton, United Kingdom.ORCID http://orcid.org/0000-0002-1165-0573
Kelly K O'BrienDepartment of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 160-500 University Avenue, Toronto, ON, M5G 1V7, Canada.ORCID http://orcid.org/0000-0002-1632-6537

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Web-based surveys involving self-reported questionnaires are vulnerable to fraudulent responses. Advancements in artificial intelligence and bots have introduced additional challenges to preventing and identifying fraudulent responses to online questionnaires. Objective: This study aimed to describe our experiences with fraudulent responses, strategies for preventing and identifying fraudulent responses, lessons learned when conducting a web-based survey with adults living with Long COVID, and recommendations for web-based survey research. Methods: The Long COVID and Episodic Disability Study is an international community-engaged study among adults living with Long COVID in Canada, Ireland, the United Kingdom, and the United States. We conducted a longitudinal web-based survey, with online administration of a self-reported questionnaire at 2 timepoints (Time 1 and Time 2), 1 week apart. We recruited through Long COVID community groups using social media, emails, and word of mouth. The survey was disrupted by fraudulent responses, including bots. To defend data integrity, we implemented the following strategies: (1) pausing our initial launch (Wave 1), (2) developing and implementing screening criteria to identify fraudulent responses, and (3) relaunching the web-based survey (Wave 2) with revised recruitment strategies and questionnaire design to prevent and identify fraudulent responses. Results: We received 4663 responses for Time 1 and 1281 responses for Time 2, of which we retained 798 of 4663 (17%) responses and 629 of 1281 (49%) responses. Strategies for preventing fraudulent responses included enabling survey protection features in survey software, shutting down compromised survey links, avoiding recruitment via public social media groups, and removing mention of a financial incentive from recruitment materials. Strategies for identifying fraudulent responses included monitoring response completion times, start and end time stamps, geolocation, and screening for suspicious email address characteristics and duplicates. Conclusions: Our lessons learned fell into the following three areas: (1) survey-design and implementation to prevent and identify fraudulent and bot-generated responses, (2) recruitment strategies to mitigate the risk of disruption by bots, and (3) responding to disruptions caused by fraudulent and bot responses. We recommend the following tactics to prevent and mitigate the risks of fraudulent and bot responses when administering online web-based questionnaires: (1) review current literature and connect with researchers and Research Ethics Boards about strategies before launching, (2) invest in survey software with rigorous information security technology, (3) use bot-detection features available in survey software before launching, (4) design questionnaire items to identify bots and fraudulent actors, (5) tailor criteria for identifying fraudulent and bot responses to the characteristics of the target population, (6) avoid recruitment in public social media groups, (7) engage community leaders in tailored and targeted recruitment, (8) avoid advertising incentives, (9) shut down compromised links rapidly, (10) communicate with the Research Ethics Board about disruptions, and (11) combine automated and manual methods to identify potentially fraudulent responses on time.

Indexed as

Artificial IntelligenceCOVID-19FraudInternetAdultCanadaHumansIrelandLongitudinal StudiesPandemicsPost-Acute COVID-19 SyndromeSARS-CoV-2Surveys and QuestionnairesUnited KingdomUnited Statesartificial intelligencebotsonline researchquestionnairesocial mediasurveysurvey fraud

Identifiers

PMID42492482
PMCPMC13395426

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.