ArticleFrontiers in pediatrics2026
Development and psychometric validation of the NICU parental agency scale: a multicenter cross-sectional study.
Article in Frontiers in pediatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Background: Admission to the neonatal intensive care unit (NICU) places families in complex medical environments where parental agency, the perceived capacity to understand treatment, communicate effectively, participate in decisions, and maintain emotional well-being, is crucial for family-centered care. This study aimed to develop and psychometrically validate the NICU Parental Agency Scale (NICU-PAS), a brief instrument measuring this multidimensional construct. Methods: The 15-item NICU-PAS was developed through literature review, expert panel evaluation, and parent focus groups. A multicenter cross-sectional study was conducted across eight NICUs in Suzhou, China, recruiting 350 primary caregivers. Psychometric validation included exploratory and confirmatory factor analysis, internal consistency reliability, and assessment of convergent validity (with parental stress) and discriminant validity (with general health and coping). Subgroup analyses compared first-time and experienced parents. Results: Confirmatory factor analysis supported the four-domain structure of Treatment Understanding, Communication, Decision Making Participation, and Emotional Well-being (χ Conclusions: The NICU-PAS demonstrates robust psychometric properties and provides a practical, domain-specific measure of parental agency suitable for research and clinical quality improvement in NICU settings.
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