ArticleFrontiers in pain research (Lausanne, Switzerland)2026
Pain in people with dementia is a significant contributor to increased professional caregiver burden: results of an observation study.
Article in Frontiers in pain research (Lausanne, Switzerland), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Aim: To investigate the association between the presence of neuropsychological symptoms, professional caregiver burden and pain intensity. Methods: Eleven neuropsychiatric symptoms reportedly associated with caregiver burden which are included within the PainChek® pain assessment tool were identified: aggressiveness, inappropriate behavior, distressed, verbally offensive, confusion, restlessness, pacing and wandering, crying, screaming, altered sleep and resisting care. A caregiver burden score based on binary scoring of the presence of these indicators was calculated (summative score range from 0 to 11). Generalized estimating equations were used to evaluate the relationships between (1) pain score and sum of caregiver indicators present and (2) pain (high/low) and caregiver burden indicator presence. Results: The results of 2,125,022 PainChek® assessments completed on 89,230 residents (Average age 84.8 ± 7.7 years, females 62.2%) were evaluated. The binary pain model reported a significant increased risk of high (i.e., moderate or severe) pain ( Conclusions: Pain associated neuropsychiatric symptoms can contribute to professional caregiver burden and are exacerbated by high pain, emphasizing the need to minimize pain in people living with dementia.
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