Trial reportSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026
Expectations and motives for nominating a family caregiver to partake in a web-based psychoeducational intervention: perspectives of patients with advanced illness in palliative care.
Trial report in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05785494 (Web-based Support to Promote Preparedness for Caregiving Among Family Caregivers of Patients With Advanced Cancer), which is not on this map. Not yet cited in PubMed.
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Web-based Support to Promote Preparedness for Caregiving Among Family Caregivers of Patients With Advanced Cancer
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4 authors.
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No grant is acknowledged in the PubMed record.
Abstract
purposeThe field of support interventions targeting family caregivers in palliative care is growing, yet little is known about the patient's perspective when a family caregiver partakes. This study explored what patients in specialized palliative home care expected from, and what motives they had for nominating a family caregiver to partake in, a family caregiver-targeted web-based psychoeducational intervention.
methodsThis qualitative study is part of a randomized controlled trial evaluating the effects of the family caregiver-targeted web-based psychoeducational intervention "narstaende.se." Patients were recruited from specialized palliative home care services after their family caregiver had participated in the intervention arm of the trial. The present study had a qualitative approach using an interpretive descriptive design. Twenty-two interviews were conducted.
resultsThe patients nominated family caregivers out of concern and recognition of the burden they faced and wished for the family caregivers to be offered support. The patients' choice was mindful, and they refrained from nominating persons whom they perceived as too frail or busy. They expected the intervention would encourage conversations about emotions, illness and the future.
conclusionPatients with life-threatening illnesses enrolled in specialized palliative home care nominated their family caregiver for a family caregiver-targeted web-based psychoeducational intervention out of love, guilt, and responsibility. They expected to approach topics that had previously been avoided and could see potential benefits also for themselves. The study reinforces the implications for support for family caregivers when organizing and providing care for patients with life-threatening illness.
trial registrationNCT05785494 at clinicaltrials.gov (registered on 2023.02.07).
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