ArticleClinical and public health guidelines2025
The Values and Preferences of People Living With Motor Neurone Disease (MND): A Systematic Review Protocol.
Article in Clinical and public health guidelines, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Response to: Comment on 'The Values and Preferences of People Living With Motor Neurone Disease (MND): A Systematic Review and Meta-Analysis'.Clinical and public health guidelines · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objective: To systematically review the values and preferences of people with lived experience of motor neurone disease (MND), including those living with MND, caregivers and genetic carriers, regarding their health-related outcomes. Introduction: MND is a devastating neurodegenerative disease that significantly impacts those living with the disease, their caregivers, and their families. Understanding the values and preferences of those affected by MND is crucial for providing patient-centred care and developing trustworthy guidelines. Eligibility Criteria: Studies will be included if they report on the values and preferences of adults living with MND; caregivers and families of those diagnosed with MND; clinicians as a proxy for adults living with MND; or asymptomatic genetic carriers of MND. Peer-reviewed studies utilising either quantitative or qualitative methodologies (or both) will be eligible for inclusion in this review. Methods and Analysis: A comprehensive search of electronic databases will be conducted to identify relevant studies. Data extraction, risk of bias assessment (of quantitative studies), and assessment of methodological limitations (of qualitative studies) will be performed independently by two reviewers. Quantitative data will be pooled using meta-analysis where appropriate, and qualitative data will be synthesised following a modified meta-aggregative approach. The relevant GRADE approach will be used to assess the certainty of evidence. Systematic Review Registration Number: CRD420250653287.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.